Tuesday, March 29, 2011

Our Life


I am overwhelmed with the love and support from all of our family and friends that we have received on behalf of Hailee. These past few weeks have thankfully become much easier than I thought it would be. I am starting to get the hang of grocery shopping...just going around the perimeter of the store, since that is all we can buy, but thats okay! Its all such healthy foods for us! Also, I am sooo excited to try out recipes from the new cookbooks my Mom bought me!
Anyways, we met with the GI specialist last Wednesday and she asked me a gazillion questions. She definitely was not the warm and fuzzy make the Mommy feel better type of doctor, but that's okay. She was very thorough. We talked alot about Celiac Disease, and she also told me that just because Hailee's initial blood result numbers were extremely high did not mean she had celiac disease. I was thinking, "great....what else could it be then?" She sent me to take Hailee back down to the lab to get more blood work done (poor girl!) This time the test was specifically for celiac. If the results came back positive again, then Hailee would need to go in for biopsies of her small intestines for the final confirmation. (Amazing how many times they have to "Confirm" it to be celiac.)
This morning the doc called and told me that Hailee's blood work came back and that it has the high elevated levels for celiac and that she would need to have the biopsy's. Originally when I found out Hailee had celiac, I was completely overwhelmed and very emotional. This time I felt so much peace, knowing that we finally did receive an answer to our prayers and that we can get our daughter feeling better. So it looks like Hailee will be going in Monday morning for this procedure.
I am not looking forward to having Hailee have the biopsy, but they said it is not painful (Thank goodness!). Hailee already HATES going to the doctors so much and constantly tells me "Mom, I just want to get outta here!" But hopefully once everything gets settled, we wont be having to make doctor visits for a very long time!
All in all, things are going much better!
To give an update on Jake....
He is 11 months old now. Crazy, huh?? I still can't believe it! He is such a funny lil kid. He is so destructive (in a cute way...for now. lol) and is always so busy! He absolutely ADORES Hailee. He can say "Dadda" "Mum" "Baba" and "Dog" and tonight he added "Doggy"
He can also now take 3 good steps! I think we will be having a walker this month! So excited!
Jake is an incredible eater. He will eat practically everything!
He takes 2 naps a day, one at 1030am and one at 3pm. They usually last for an hour to hour and a half. He goes to bed at 8pm and wakes up at 730am. I love his schedule!
He is such a happy little boy and has so much personality. He cracks up about everything, loves playing games. His favorites are rolling a ball back and forth, playing chase (We will crawl and chase him or he will chase us) and he also loves playing peek-a-boo. He bring so much love into our home and we just love him and Hailee to pieces!
Now time to enjoy some pictures!

Jake loves his cars!
Grandma time!
Best buds
Hailee and Kylee
Jake and Tyler

Miss Karate girl!
Hailee's spider
Jake didn't realize he was supposed to put the chalk on the driveway...not in his mouth! lol
Jake's first haircut! So cute!!
Hailee had her bangs trimmed too!
Hiking at Santa Rosa
She is fearless!



Hailee was our guide. She kept telling and showing us which we we needed to go.







7 comments:

Leanna said...

Your two little ones are so adorable Laurie! Little Jake is darling! Love his new haircut. Love how precious Hailee is too! What a blessing to be figuring out everything about Hailee so that she will feel better. How lucky she is to have a mommy like you!

Crafty Mom said...

they 'confirm' it so many times so that they wont be hit with a lawsuit if it turns out the first confirmation was wrong (by say another doctor or something) and it had adverse effects. I'm so glad you guys have figured out what's wrong with Hailee. I can't even begin to imagine what I'd do if it was one of mine.
Jake and my Brianna seem to share the same ideas about food. If it's edible they'll eat it. The only thing Brianna wont eat is raisins. Not even in cookies or bread or bagels. Not even the chocolate covered raisins. We've tried. She just sucked the chocolate off, grabbed our hand and spit the raisin into it. LOL.

emily said...

Laurie!!! I am happy that you guys were able to find out what was wrong, and I hope the biopsy results are good! Hailee is such a beautiful, tough girl! I hope you guys are doing well and I will say my prayers for you guys!! :0) Much love!!

Sundbergs said...

That is a lot to take on for you. I jsut got all caught up. So glad there has been so many people to help. SOunds like you have done all you need to do to help her. Hope all goes well with the biopsy.

Sundbergs said...

Lot of prayers for your family from us.

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lisaray said...

This reminds me of Daniel's early years. I started telling the doctor's there was something wrong when Daniel was 2. By the time he was 4, they finally agreed that there was something wrong, but they didn't know what. At 5, they said he had autistic-like tendencies, but was not autistic. He was finally diagnosed as high-functioning autistic at age 6. WAY too long to find out what was going on. (No, this was not something that had him in physical pain, but it was a wrenching time for us anyway.) I'm so glad that you are finding out what's going on with Hailee, so she can get on the right diet, and help her!

(Gray skies are going to clear up, put on a happy face...")